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ISBN: 1412005841Издательство: Not Avail
Год издания: 2003
Book Description In May, 1997, Randy and Helen Baldwin eagerly welcomed their third child, Jeffrey, as did his older siblings, Matthew and Katie. Jeffrey's arrival, unplanned but greatly anticipated, sparked a few adjustments in this family long removed from diaper duty, but Jeffrey was obviously a special gift. Eight weeks later, life took a completely unexpected downward spiral into the depths of despair when Jeffrey was diagnosed with Spinal Muscular Atrophy (SMA), a rare, progressive genetic neuromuscular disease with deadly ramifications. The neurologist handed over the utterly devastating news that Jeffrey had a severe case of the most destructive form without a morsel of hope that anything could be done to thwart the effects of the killer disease. Faced with the nightmare that their baby was expected to die within two years and that there was no treatment or cure, Randy and Helen took their faith in God to a higher level and embarked on a quest to defy SMA and its...